Monday, June 14, 2010

Hidradenitis Suppurativa,

HS is also known as 'Acne Inversa.' HS is a non-contagious, recurrent skin disease usually found in inverse areas of the body, or those places where there is skin-to-skin contact (armpits, groin, breasts, buttocks, etc.) and around hair follicles where apocrine sweat glands are located. HS is characterized by a progression from boil-like, cyst-type or abscess-like lesions to non-inflamed, hard lumps to painful, rounded deep-seated inflamed lesions with subsequent scarring and chronic seepage (suppuration --- hence the name).

These hard lumps occur under the skin and may be as large as baseballs in some people. They are very painful to the touch and may persist for years with occasional to frequent periods of inflammation. Inflamed lumps lead to extensive draining and the development of sinus tracts, or tunnels under the skin, which heal slowly or not at all and can lead to further inflammation and lumps; bacterial infections are possible at these sites. The HS sites can be painful and the pain can occur 24 hours a day, 7 days a week for HS sufferers during flareups. The sites can have drainage, which may have a foul odor.

The pain, the drainage and the odor can often limit activities and cause depression so that people often do not or cannot work, or even go out in public. Most often, HS goes undiagnosed or misdiagnosed for years. The patient ends up in a very expensive and exhausting futile search for help. So not only is the patient dealing with a painful problem – they are following a trail of useless treatments. The pain pushes the patient to seek relief, only to be met with failure. The stress from the building sense of hopelessness – exacerbating the pain, depleting funds and ultimately can result in depression. In addition to depression, there are many other physical and psychological impacts and effects HS can have on a person.

There is currently no successful treatment or research for HS
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Laci said...

I myself have suffered from HS since about 11 years old (it usually shows itself around puberty, hence why we think it is hormonally related). Thank you for raising awareness! :0)

by BB*Jayde said...

Thank you for commenting Laci :)
I'm so sorry you have to suffer with this :(
Hormones are to blame for a lot of this sort of thing.. Do you have any idea if it's due to testosterone or estrogen? I can't find ANY research on this.. and I've looked for weeks and weeks before making my blog post.. and I found out there is is very little to no research being done :(

I'd loooove to find out more about your experiences and theories!