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Thursday, June 17, 2010

To my Pregnant Divas... PLEASE be careful this summer!

It's finally summer time... Everyone has been waiting for some well deserved va-cay time.
Some will be going to the beach, some camping in the mountains.. some to the awesome cabanas in Mexico with the swim up bars *coughtGina&MaryBcough*

Whatever you plan to do this summer.. have fun by all means. BUT if you're pregnant...  you may want to reconsider your trip.. especially if it's farther than an hour away.

Our niece Desiree, some of you know and have dealt with her when we had Paypal yet.. is 31 weeks pregnant.
She was taken to the hospital via ambulance last night around 9pm because she's been having horrible leg pain (and swelling) She first went to the ER on Tuesday morning, but they sent her home and told her the baby was laying on her sciatic nerve... Well, she went back yesterday morning and was there all day... then we get the call around 8:30pm that we need to go over there to pick up Steve (her partner) to take him to Allentown (bigger hospital) because they are sending her down via ambulance to another hospital and he can't ride along. She went on to tell us that the swelling and pain in her leg was due to a huuuuugh blood clot. But, not just ANY blood clot, but a "bunch" (more than 60) of blood clots that have formed a huge mass in her leg and has now traveled up  her thigh.  It's so big that they can't see the whole thing on an ultrasound. They can see where it begins, but they can't see where it ends.

As of tonight she (and the baby) are stable, but she's in a ton of pain. She's on some pretty heft pain killers that should have knocked her out, but she's still wide away screaming in pain and obviously extremely scared (she's only 19) We have no idea WHAT is gonna happen :(
They've given her some Heparin.. I read online that it'll dissolve the clot, but the doctor said it will not, it'll only keep new ones from forming, I guess the game plan is to just monitor her, monitor the baby and make sure this clot doesn't break apart and travel up to her heart or lungs... and if it does, they're gonna hurry up and take the baby and then work on the clot/s.

The moral of the story is....  The doctor is suspecting that the clot/s formed last week when she was sitting in a car for 4 + hours when she was on her way to the beach with her friends in Maryland.
I never once considered that or even thought anything of it at the time...
It's strongly advised that pregos do NOT fly or sit for long car rides because of the possibility of a blood clot forming. PLEASE PLEASE PLEASE reschedule your vacations.. or maybe book one closer to home.
I hope to God nobody else ever has to go thru this. I'm scared to the point that I'm sick.. I couldn't imagine what a 19 year old (prego with her first baby) must feel like... in the hospital knowing that at any second this could kill her and/or her baby... and there's absolutely NOTHING they can do. The doctor said her body might fight it.. I can see maybe if it were ONE clot.. but not a huge mass that can't even be detected in it's entirety on an ultrasound because it's so huge!
What's even worse is there is absolutely NOTHING we can do but wait and hope that the clots don't move... or the baby hurries his lil butt up and matures so they can get him out and get this taken care of.

So, once again... please! Be extremely careful.. stop every half hour- hour and walk a little.. or massage your legs.. something! Don't let this happen to you!


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UPDATE
Desi is home! She still has the massive clot and is still having a hard time getting around, but she's being monitored and on Heparin 3x a day. She only has a couple weeks left so hopefully they'll fly by.

Thank you for all the prayers!

Here she is visiting with BB the weekend before she left.

Monday, June 14, 2010

Hidradenitis Suppurativa,

HS is also known as 'Acne Inversa.' HS is a non-contagious, recurrent skin disease usually found in inverse areas of the body, or those places where there is skin-to-skin contact (armpits, groin, breasts, buttocks, etc.) and around hair follicles where apocrine sweat glands are located. HS is characterized by a progression from boil-like, cyst-type or abscess-like lesions to non-inflamed, hard lumps to painful, rounded deep-seated inflamed lesions with subsequent scarring and chronic seepage (suppuration --- hence the name).

These hard lumps occur under the skin and may be as large as baseballs in some people. They are very painful to the touch and may persist for years with occasional to frequent periods of inflammation. Inflamed lumps lead to extensive draining and the development of sinus tracts, or tunnels under the skin, which heal slowly or not at all and can lead to further inflammation and lumps; bacterial infections are possible at these sites. The HS sites can be painful and the pain can occur 24 hours a day, 7 days a week for HS sufferers during flareups. The sites can have drainage, which may have a foul odor.

The pain, the drainage and the odor can often limit activities and cause depression so that people often do not or cannot work, or even go out in public. Most often, HS goes undiagnosed or misdiagnosed for years. The patient ends up in a very expensive and exhausting futile search for help. So not only is the patient dealing with a painful problem – they are following a trail of useless treatments. The pain pushes the patient to seek relief, only to be met with failure. The stress from the building sense of hopelessness – exacerbating the pain, depleting funds and ultimately can result in depression. In addition to depression, there are many other physical and psychological impacts and effects HS can have on a person.

There is currently no successful treatment or research for HS
For more information go to :
http://www.hs-usa.org